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The Cafe - 'TC' So? Your daughter wants her belly pierced? Your cat keeps using the couch as a litter box? Your husband taped the Hockey game over your wedding video? Your neighbor has a gnome collection and it makes you mad? Pour yourself a cup of coffee and come on in to The Café! Talk amongst yourselves...discuss, question, reply, or respond to many subjects!

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Old 10-26-2007, 05:20 PM
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Well DS was diagnosed with epilepsy.....

I am sort of still a little shocked, and a little bit mad.......I mean, come on this poor kid had as enough on his plate already, between his horrible ashtma, and autism, did we really need to add something else for him to deal with.......

They gave us Topomax to give him (which for me is weird since I've been on this for my migraines) but we can't actually give it to me....we need to find something else. He needs to swallow it, well he doesn't swallow pills, and with his gag reflex and texture issues we can't hide it in anything else......Planning on trucking my butt back into the Dr's office on Monday so we can find another option for him drug wise......
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Old 10-26-2007, 05:38 PM
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Many meds for migraines are also used for seizures. My dh started having seizures after having shingles then viral encephelitis. He had extreme headaches which would bring on seizures. He tried many meds including Topomax. They did not help. Right now he take Lyrica, Zonegran, and ativan and that combination has gotten him to about 2 seizures a week. Zonegran really helped.
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Old 10-26-2007, 05:40 PM
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So sorry to hear about your son.

Maybe Topomax is available in a chewable?? I would call your pharmacist and get some advice so you go in to the doctor's office with info about alternatives.
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Old 10-26-2007, 06:07 PM
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Hopefully the doctor can prescribe an alternative form of medication for your little guy .

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Old 10-26-2007, 06:47 PM
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Awww, that's a bum deal for the little guy - and for your family. Sorry to hear that....lean on your friends at MC if you need some support, mabear.

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Old 10-26-2007, 08:06 PM
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topamax can be dissolved and added to a small amount of water or juice..however the caplets can not be..Michael takes Topamax and Depakene via his g-tube and the depakene is liquid, I think that one can come in caplets that can not be dissolved also, but we dissolve his all the time so it will go thru the g-tube and have for years with no problems..
Topamax is used as a migraine drug, and a weight loss pill too...Depakne or Depakote is used as a migraine drug also.
Check with you Dr. about dissolving it, it was okay with my neouro to do so and is stated on the bottle...I am lucky Daniel will swallow pills and prefers them to liquid meds.
Maybe you can do like we did with him, we started with small pills in applesauce and it went from there on swallowing pills.
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Old 10-26-2007, 08:10 PM
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At least now you know what caused the seizure. Poor little man, sometimes the kiddo's seem to get a raw deal huh. Good luck finding another med.
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Old 10-27-2007, 02:22 AM
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Quote:
Originally Posted by mabear74 View Post
I am sort of still a little shocked, and a little bit mad.......I mean, come on this poor kid had as enough on his plate already, between his horrible ashtma, and autism, did we really need to add something else for him to deal with.......

They gave us Topomax to give him (which for me is weird since I've been on this for my migraines) but we can't actually give it to me....we need to find something else. He needs to swallow it, well he doesn't swallow pills, and with his gag reflex and texture issues we can't hide it in anything else......Planning on trucking my butt back into the Dr's office on Monday so we can find another option for him drug wise......

Mabear, I wanted to let you know it's not uncommon for a child with Autism to have Seizure / Epilepsy.
I have a 7 year old son that has Autism and he too has a form of Epilepsy. As a Matter of fact before he was even DX with Autism he was DX with Over firing of the Brain( A form of Epilepsy) He's been taking Gabitril for 4 years now and he also takes Lamictal. His Gabitril is 4mg taken 2 times daily and his Lamictal is 100 Mg taken 2 times daily. Try not to worry this is very common for children with Autism.
Hugs to you and him.
I have posted a few website to halp ease you a little about your son's newly DX.. Hope this helps.

Epilepsy And Autism
Hughlings Jackson in 1870 postulated about epilepsy as an intermittent derangement of the nervous system due to “an excessive and disorderly discharge of cerebral nervous tissue on muscles.” This has been supported by modern electrophysiology. As a result of the discharge, there may be an instantaneous loss of consciousness, altered perception or impaired psychic function, convulsive movements, disturbance of sensation, or some combination thereof. Seizure always indicates that the cerebral cortex has been affected by disease, either primary or secondary. Epilepsy is often associated with global central nervous system disorders like cerebral palsy, mental retardation and autism. In autistic children, the risk of seizures increases if they have certain specific neurological disorders like neurofibromatosis, tuberous sclerosis, phenylketonuria (untreated). Children with symptomatic infantile spasms (sudden generalized muscle contractions usually beginning between the ages of three and eight months) tend to develop both epilepsy and autism. Complex partial seizures or temporal lobe epilepsies show different clinical features in children of different ages. The general course tends to be favorable. Adverse course may be seen in children with perinatal complications, spike-wave complexes in the EEG and those with psychomotor and psychosensory seizures. Hashimoto et al reported a tendency for epileptic foci to occur in the frontal region in autistic children and they suggest that frontal dysfunctions may be important in the mechanism of symptoms of autism.

http://www.epilepsyfoundation.org/ep...ndepilepsy.pdf

Autism And Epilepsy

Autism-Seizures.
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Last edited by got2save2; 10-27-2007 at 02:36 AM.
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Old 10-27-2007, 04:01 AM
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Sorry to hear that..
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Old 10-27-2007, 06:40 AM
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I read your post last night and was too tired to reply...so here are a few random thoughts!

got2save2 posted exactly what I was going to say!

The epilepsy foundation is a great source.

There are many seizure medications and you have to play with them. Many come in liquid form so the texture issue can be avoided. Research the drugs and know the side effects. Some side effects can be worse than the seizure.

In our case my DD was missed diagnosed and I knew the doctor was wrong. I refused to give the meds and she has not had another seizure. We got a second opinion and the first doc was over-ruled by her collegue. I don't recommend everyone do this, I have a neuro background so I understood the process. But what I'm saying is we have to be advocates for our children because we know them best!
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Old 10-27-2007, 06:52 PM
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Thanks so much for the support and info...Think I just needed a little bit to wrap my head around it.....

Now I can learn what I can, deal with it and move on......
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