I found out about this precious baby by keeping up with Ethan Powell. He just turned a year old, is just cherubic, and is fighting for his life. He is at St. Judes and has ALL, it's a bad type of leukemia. His parents have a website that they update daily, and has photos. He just looks so precious, it's hard to believe all that angel baby has been thru. He is really at a critical point, and he needs all the prayers he can get, actually needs a miracle at this point. I'm asking that all of you pray for him, and pass the word along at church, or wherever you can. The website is thru The Caring Bridge, I don't know how to link, but I think it's http. Sullivanfarrar.com. . I will never understand things like this. I know as Christians we are not to question God, but I think an innocent baby going thru this, well it really bothers me. Just please everyone pray for him.

Will someone help me with the linking? Maybe it's Sullivan Farrar

That link worked well - thanks for sharing his story, Sully and his family will be in my prayers. He had a BMT in February?

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Mary

I went through the links on Ethan Powell's site again yesterday, 2 kids have died in the last couple days, one on the 4th and one on the 5th (well, one might not be linked directly there, I explored links I found on some of those pages). So sad

Such a strong family. I can't imagine the suffering. God bless them!!!

Sully and his family will be in my prayers also.

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Brenda

GO #24 JEFF GORDON

They are in my prayers. I give to St. Jude every month. I sighed the guest book and left a message. nancy

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When you don`t know what to do-Walk fast and look worried.

Sadly, Sullivan lost his battle with leukemia on 8/2. Just wanted to update those that have been following his story. My heart aches for his family.

So very sad. His family and the family of all the other children who are sick will be in my thoughts and prayers.

I have been following this story religiously since the original posting. It seemed as though he was getting better and then his little body could no longer take it. I have been thinking about him for the past few days. I am so glad that the family shared their story and their precious baby with the world for the small amount of time he was here.

I just read this. So sad!



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August 2, 2008

(Day +167)

Sully has gone home to our Lord!! Sully passed at 6:50a.m. Sully is now free of pain!!! He is our hero!! Sully went home very peacefully! Jason and I were taking 2 hour shifts holding him so that we could also try and get some sleep. His last two hours I was holding him and he would look up at me so sweetly and I just kept telling him that it was okay and that mommy was still here! As I was passing Sully to Jason, Sully began to just take two small breaths and he was gone!! Sully was waiting for us to both be there!! He is now home and free! We can take comfort in that!! We will let you know the funeral arrangements when we make them!! Thanks for all your prayers and for being a part of Sully's journey to life!! He is now having the best life he could ever have!! KEEP PRAYING for all the other children who are fighting cancer!!

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I am so saddened by this. I usually read the updates everyday but lately life has gotten busy and I haven't been able to read them everyday. Last time I read he seemed to be doing ok. I am so very sorry for his parents but very happy the baby is finally pain free and at peace.

I have to been keeping up with the updates on him. I found his site through Ethan's. I am so sad for his family. Cancer sucks

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SAHM of Bailey 12, Tyler 10 , Emily Ann 6, and Ryan Matthew 4 yrs old.

I just now saw this post for the first time. I am so sad for his family. My DS had ALL 16 years ago when he was 5. Back then the cure rate was over 80%, so people got very nonchalant about the desease, I have never heard of a baby being born with it, though.

Oh, that is just too sad!!! What a gorgeous baby. Prayers to all his family.

His parents just seem to be so brave. I'm glad that they have such a strong based faith, I'm afraid I wouldn't be as gracious as they are. It's just so sad. Reading the updates everyday makes you feel connected. Lordy, cancer is such a horrible, vile disease. Those poor parents.