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The Cafe - 'TC' So? Your daughter wants her belly pierced? Your cat keeps using the couch as a litter box? Your husband taped the Hockey game over your wedding video? Your neighbor has a gnome collection and it makes you mad? Pour yourself a cup of coffee and come on in to The Café! Talk amongst yourselves...discuss, question, reply, or respond to many subjects!

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Old 03-17-2009, 08:31 PM
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A quick post to catch up those who have asked...

So, I've been doing chemo since 2007 now. Last week I got a CT scan. I arrived at the hospital at 11:30am, and was immediately given my nasty contrast drink. I had to drink around 40 ounces of the stuff-- this time it was flavored with lemonade, and I have to admit it wasn't as bad as in the past. It took me about 15 minutes to get it down, then I had to wait 45 minutes. After they called me back, they did 3 scans, then inserted the IV and flushed the dye and did 3 more. I was free and clear by 12:45pm, so I went down to the little cafeteria they had on the 2nd floor and grabbed a small bowl of soup.

My appointment with Dr. M was at 1:45, and luckily she was running a little late, because Scott didn't get there til 2:15pm. I went back to do vitals first, then she came in to talk to Scott and I. She gave us a copy of my CT scan results, and said that not much had changed since my scan in December. She seemed pleased with that. I still have a few small nodules in the peritoneal cavity. Unfortunately, the lab lost my bloodwork from 2 weeks ago, so I had to do it all over again, and we can't proceed with a decision about treatment til we know what my CA-125 is. It basically came down to 2 options:

#1 If my CA-125 is below 50, she will allow me four more weeks off chemo, and I will take a once a day hormonal therapy pill (from home) called Femara. This drug has given new hope to Ovarian Cancer patients-- it is a Letrozole hormone therapy. I will stay on this drug for 4 weeks, then come back and re-test.

#2 If my CA-125 is over 50, we have option "a", and option "b".

a) Topotecan once a week, at the cancer center, per usual infusion.

b) Etoposide, a pill taken daily that I could do from home.

They both have similar side effects-- I'd lose my hair for both, etc. The Etoposide has one rarer side effect that makes me nervous though... the possibility of developing a secondary cancer (like acute leukemia) years later.

Dr. M also wanted to hold off on my port-a-cath surgery until we know exactly when we'll be starting chemo up again. I think she is trying to avoid putting me through anything else til I absolutely need it.

She called me back 3 days later and said that my CA-125 was 27. WOOT!! She said the good thing about the Avastin I was taking at Duke, is that it stays in your system a long time, and continues to work. This is VERY good news, as it means I can have another 4 weeks off from chemo!! She called in the Femera for me to take every day, but it's a mild hormonal therapy. I'm so happy! Four more weeks of a break will do me SO much good.
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Old 03-17-2009, 08:39 PM
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Quote:
Originally Posted by haynes94 View Post
So, I've been doing chemo since 2007 now. Last week I got a CT scan. I arrived at the hospital at 11:30am, and was immediately given my nasty contrast drink. I had to drink around 40 ounces of the stuff-- this time it was flavored with lemonade, and I have to admit it wasn't as bad as in the past. It took me about 15 minutes to get it down, then I had to wait 45 minutes. After they called me back, they did 3 scans, then inserted the IV and flushed the dye and did 3 more. I was free and clear by 12:45pm, so I went down to the little cafeteria they had on the 2nd floor and grabbed a small bowl of soup.

My appointment with Dr. M was at 1:45, and luckily she was running a little late, because Scott didn't get there til 2:15pm. I went back to do vitals first, then she came in to talk to Scott and I. She gave us a copy of my CT scan results, and said that not much had changed since my scan in December. She seemed pleased with that. I still have a few small nodules in the peritoneal cavity. Unfortunately, the lab lost my bloodwork from 2 weeks ago, so I had to do it all over again, and we can't proceed with a decision about treatment til we know what my CA-125 is. It basically came down to 2 options:

#1 If my CA-125 is below 50, she will allow me four more weeks off chemo, and I will take a once a day hormonal therapy pill (from home) called Femara. This drug has given new hope to Ovarian Cancer patients-- it is a Letrozole hormone therapy. I will stay on this drug for 4 weeks, then come back and re-test.

#2 If my CA-125 is over 50, we have option "a", and option "b".

a) Topotecan once a week, at the cancer center, per usual infusion.

b) Etoposide, a pill taken daily that I could do from home.

They both have similar side effects-- I'd lose my hair for both, etc. The Etoposide has one rarer side effect that makes me nervous though... the possibility of developing a secondary cancer (like acute leukemia) years later.

Dr. M also wanted to hold off on my port-a-cath surgery until we know exactly when we'll be starting chemo up again. I think she is trying to avoid putting me through anything else til I absolutely need it.

She called me back 3 days later and said that my CA-125 was 27. WOOT!! She said the good thing about the Avastin I was taking at Duke, is that it stays in your system a long time, and continues to work. This is VERY good news, as it means I can have another 4 weeks off from chemo!! She called in the Femera for me to take every day, but it's a mild hormonal therapy. I'm so happy! Four more weeks of a break will do me SO much good.
So nice to see you here Holly! Fantastic news!

(I am Itscoldinhere78 on your zanga). Waving hi to Holly!
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Old 03-17-2009, 09:42 PM
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Kick it's ass Holly!!
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Old 03-17-2009, 10:31 PM
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Great news Holly. Good thoughts and prayers coming your way.
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Old 03-17-2009, 11:28 PM
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Cancer is a b*tch...please kick its a**!! Sorry to hear that you have been put through the ringer. Hang in there girl and listen to the Drs. advice-sounds like they know what they are doing. You are in my prayers. Lynne
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Old 03-17-2009, 11:32 PM
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That's great Holly!! No chemo for four weeks!! Sounds like you're doing really well.

Thanks for giving me the great advice to help my friend, Carol. I really appreciate it. She's having a scan tomorrow and more chemo.
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Old 03-17-2009, 11:34 PM
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I am so happy for you Holly !!!
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Old 03-17-2009, 11:46 PM
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Congrats!!! Prayers said!
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Old 03-18-2009, 01:28 AM
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Fantastic!!! Will continue to pray for you!!!
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Old 03-18-2009, 05:08 AM
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That's wonderful news. I hope you continue to do well!
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Old 03-18-2009, 07:00 AM
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That's great! A breather will be good for you.
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Old 03-18-2009, 07:08 AM
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Holly, I'm SO happy to hear your getting a much needed break. My thoughts and prayers are always with you. Give it the final boot!
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Old 03-18-2009, 10:39 AM
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Keep up the good work!
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Old 03-18-2009, 10:43 AM
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Thats great news!! So good to hear from you. Glad your doing well.
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Old 03-18-2009, 02:02 PM
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I'm glad that you will get a much needed break. It's great news and prayers are with you. I saw a T shirt the other day that said "Hey Cancer...You picked the wrong broad!"...I liked that! Stay strong and continue your fight. ~Lisa
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Old 03-18-2009, 04:33 PM
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Great News!!!!

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Old 03-18-2009, 08:35 PM
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Thanks for keeping us posted. So happy to hear you got some good news!

Enjoy your month off!
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Old 03-18-2009, 08:59 PM
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Thanks guys. I appreciate your encouragement and support.
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Old 03-18-2009, 09:47 PM
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Tears of joy Holly!! YEAH!! I am so glad you are getting a well needed and deserved break from the nasty chemo
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Old 03-21-2009, 06:28 AM
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Hugs and hope to you, Holly.
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Old 03-22-2009, 01:35 PM
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I am amazed at your strength. Enjoy your break. Hoping to hear lots more good news from you.
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Old 03-23-2009, 10:14 PM
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great news my continued prayers are with you.
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Old 03-25-2009, 05:59 PM
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That is good news, Holly! Congrats on the break from chemo...
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Old 03-26-2009, 08:04 AM
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GREAT!!!!!! I know when my DH had to stop Chemo for a few weeks due to low blood count it was a welcome relief for him. Please take care and embrace the good news.
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